I got my packet from the new onc with info on a clinical trial he thinks may be beneficial to me. The trial is for a drug called
XL184. I have a lot of information to process before I make any decision. I was very impressed with this new guy. When I asked him his opinion on alternative medicine he said "Patty- I couldn't sit here and talk to you about experimental treatments without having an open mind about other treatment options", and he gave me a card for a Naturopathic Oncologist that he consults with. He is all for things that make his patients feel better, and all the patients he's referred to him have reported just that.
My pain meds have been upped to a Fentanyl patch. I'd been taking dilaudid all week, with little relief. Neither seem to do much for my pain, but instead make me tired and loopy. Will have to discuss this with oncologist. My shoulder is still whacked out. I'm waiting for the MRI authorization to go through, and will start physical therapy next week.
I think my get up and go musta got up and went. I'm so tired.
That trial looks interesting! Thank you for sharing the link. You can always drop out if you don't like it (IF you decide to try it).
ReplyDeleteI hope your pain is under control soon. Pain meds make me tired and loopy too :(
Have you had time to ponder all that info? How do you feel about it? Let me know if I can help or if you need someone to bounce ideas off of. I'm here 24/7 for ya, you know that.
ReplyDeleteBIG fat juicy love.
shanny
I hope you're feeling better soon or at least feeling okay. Make that pain go away.
ReplyDeleteI hope the patch gives you more relief. I never know what to say when it comes to trials. I pray that it really helps you if you decide to do it, obviously. My prayers are with you.......Denise
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