I haven't talked about hospice, or much of anything lately. It's a full time job to properly medicate myself all day. But hey, I can multi-task! Right this minute I'm having an albuterol treatment in my new nebulizer. It's also taken me about a week to pull this post together.
The word "hospice" is a pretty scary word to most people. Some immediate thoughts upon hearing the word "hospice" are DEATH! DYING! KICKIN' THE BUCKET! (ok, that one was mine). But I chose hospice because treatment for my cancer was not working any more, and the cancer is spreading. I am in a totally new Place. I'm soaking up all these new feelings since I signed that one little orange paper. I'll save that for later.
I have my own hospice team. I have a doctor that makes house calls. She is amazing! I have a RN case manager, "A", who oversees all my care and stops by once or twice a week. I have another RN, "L", who covers when A is out. I have a phlebotomist, "R", that comes by and draws my blood once a week. I have a social worker, "N", who takes care of my head, and everything and everyone around me. She brings me flowers.
My hospice is a not-for-profit organization so all of my care not covered by state insurance is taken care of. I can't even begin to tell you how wonderful they all are. Just when you think there couldn't possibly be any more they could offer you, they're back with a massage therapist for my lymphedema. Their pharmacy delivers day or night. My oxygen and supplies are delivered round the clock. A couple weeks ago I said "I have a swollen ankle". An hour later there was an ultrasound tech at my house checking me for DVT.
They really listen to me. They are all about me and my pain and my feelings and my children and our comfort. I have not had a bad experience or weird vibe from anyone I've met through hospice. God, what did I do to deserve this kind of loving, kind, compassionate care? I am blessed beyond belief.