This is my own story of life with advanced ovarian cancer. I do not offer medical advice, and my treatment decisions are my own. Please talk to your physician or healer and gain as much information as you can about this dreadful disease called cancer. Remember, knowledge is Power!
Showing posts with label mind body. Show all posts
Showing posts with label mind body. Show all posts

Monday, October 25

It's Been A Weepy Week

I've spent a lot of time at TWC lately. Last Monday I went to the Mind/Body thing, where we learned more about positive thinking, self-hypnosis, meditation, things like that. It was very informative. 

Tuesday, my son and I went to the Kid2Kid/Family2Family thing that we'd been to a couple weeks earlier. We shared a nice dinner with another family, then split into our separate groups. The kids got to do sand trays, which is a very therapeutic, interesting and effective way for them to express themselves. 

On Wednesday, I went to the Relaxation/Visualization class, which was incredible! Low lights, soft chiming music, the voice of the therapist softly leading us to happier places- wow. I'm definitely doing that again! Then straight from there to my weekly support group in the other building. 

Thursday, I went to the Cooking For Life class. The main theme was eggplant. Now, I'm not a big eggplant fan- I've had it a few times and just wasn't impressed. But the dude that ran the class showed us 3 different ways to use an eggplant. He is really big on Moroccan cooking, so he made a tagine, some baba ganoush, and some eggplant "burgers". I must say- I left that class stuffed to the gills! Then it was off to the other building for the Five Wishes class that explained Living Wills and advanced directives. I can't even tell you how weepy I got that night reading through that. And for a few days afterward, too. (they did warn us that it might bring out some "strong emotions". They weren't kidding.) 

You know, I really thought I had it all together, but apparently I don't. My game-face fell off, and my Laugh-In-The-Face-Of-Death attitude took a hike. It wasn't even about the preparing-to-die thing, really (which I'm not). What got me, was what I thought people would/should do naturally for someone in their final days- it never occurred to me that some people would actually need it spelled out for them- things like playing music, or holding your hand, or praying, or BASIC COMFORT care, like a cool cloth on your head, or keeping you clean. I don't even know the kind of people that wouldn't do that for someone, and it broke my heart to think that others don't get that kind of  loving treatment.

Anyway- I was making notes in the margins on my Five Wishes list, and wrote down the names of a few people that I would like praying with me. I have a couple friends outside of the church that I really connect with on that level. I went out on Friday night to see my friend's band play at this biker bar and lo and behold, there was one of the guys on my list! I hadn't seen him in awhile, and he was there sitting in with the band. We were talking outside during the break and he said "you got time for a quickie before I go back in and play"? (He meant a PRAYER, you pervs- you know who you are!) So there we were, standing out in the parking lot of the biker bar praying quietly while the thunder of motorcycles filled our ears. It was a beautiful thing. Thank you, Kenny Goodman! (his bio says "God and Guitar") Yes, indeed. I cried all the way home.

Yesterday I took a ride out to Surprise to see a pastor friend of mine at his church. It's pretty far away so I hadn't seen him since he baptized me last year. He is one of the other names on my list of people I want praying with me/for me. Don't get me wrong, I welcome prayers from EVERYONE, but these guys are special. We caught up a little before the service, and when he heard my news he immediately rounded up the elders from the church. They surrounded me in a protective cocoon and sent up some heavy duty prayers, for me, and gave me their blessings. He also talked about me during the service, so I had a whole lotta people coming up to me afterward sharing love and support. It was incredible! After church I met up with one of my very best friends from waayyy back that I haven't seen in a long time. We had a wonderful time together- it was like we'd not spent the last 5 years apart. And I cried all the way home. 

It's been a weepy few days for me. I think I've cried more this past week than the whole 18 months since I was diagnosed. I don't think I was crying for myself; I think it was more because people believe in me and show me so much love- it overwhelms me at times. I pray that you all have friends  and family like mine. I love you all.

Monday, October 18

One Week Down

10/10/10 (nice day to start a new life, huh?)

Step One:  STOP POISONING MYSELF!! Eliminate all alcohol, sugar, processed foods, meat and dairy products from diet. Bye-bye, Babyface. I'll miss you.

Consume as much fruits, veggies, leafy greens as possible. Good thing I love that stuff- No problem there! As my friend Shannon Rose says: Eat the rainbow!
Went to my local Sprouts and bought all kinds of leafy greens, brightly colored peppers, organic stuff. 'Scuse me, RAW organic stuff! I bought this vinegar- Holy cow, it's so good!


And this: tastes like ass  Organic Flax Oil- YUM! Put it in smoothies, or with that tasty vinegar on salad or veggies. But don't take it straight. I'm just sayin'. . .

Stuff I tried:              
Not bad in a smoothie, okay in coffee, definitely an acquired taste
Living Harvest Tempt Hemp Milk, Unsweetened Original, 32-Ounce Containers (Pack of 12) Soymilk, Unsweetened, Aseptic, Organic, 32 oz.


Garden of Eatin' Tortilla Chips, Red Hot Blues, 9-Ounce Bags (Pack of 12) Muir Glen Organic Salsa, Black Bean & Corn, Medium, 16 oz 
Dude. WOW.  Pretty soon I'll learn how to make this stuff. WOW.

Other things I ate: 
vegetarian chili with whole wheat pasta (AWESOME)
roasted veggies (peppers, zukes, squash, garlic, yams, onions) with safflower oil and spices (AWESOME)
organic whole grain bread (GOOD) with organic RAW honey (BETTER)
lots of salads with interesting veggies (REALLY GOOD) and that BADASS VINEGAR (WAY BETTER!)
smoothies with banana (always), green stuff, juices. (REALLY GOOD til you add flax oil)

Other things I did towards my New Life of Healthy Living:
Went to my support group at TWC.
Read, researched, walked, laughed, hung out with my girls all week, went to Flagstaff, loved.

Today I'm going to The Mind Body Connection program at TWC.
Thursday, also at TWC, is a class called Five Wishes. It shows you how to create a Living Will and deal with those issues.

You know, I really can't say enough good things about The Wellness Community. Almost every day there is something interesting, informative, fun, therapeutic, and educational- from networking groups specific to your cancer, to general support groups, kid stuff, exercise, yoga, meditation, art, book club, and Cooking For Life, as well as speakers on genetic counseling, new technology, information on clinical trials, chemo brain, dealing with side effects, and living your life during and after cancer. I have learned so much there! And I've made some wonderful new friends. I EVEN GOT MY KID TO GO, and if you know us, you know how hard that was to pull off. (he's 14 and has a hard time dealing with it- so he doesn't). If you have TWC in your area, I encourage you to GO. Best of all, it's totally free.

Oh yeah- last week I had my cardiology and pulmonology follow ups. Here's what they had to say:

Cardiologist: (when asked if HE would do chemo, not only once or twice, but a third time) "Well, Patty- as a medical doctor, I would encourage you to talk to your oncologist about your plan. He's a smart guy (I know). Personally, I would try chemo again. Then again, I wouldn't do the whole lifestyle change, either- if it came down to the matter of what I eat and how long I'm gonna live, I'll take the steak every time. ALSO, I do recommend getting the MUGA (heart scan) done whether you decide to do chemo or not".

Honesty is his policy, I guess. I like it. He ALSO (ding ding ding!) said I could go off the BP meds I've been on since I had the heart attack last year. He told me to stay on the Coumadin (blood thinner) for awhile and he will monitor that weekly for me.

Pulmonologist: Well, Patty- it looks like your lungs are clear, and that the Valley Fever seems to have resolved. You can quit taking the Diflucan (anti-fungal) now. I'll be interested to see how your choices turn out! I would advise you to thoroughly research naturopathic doctors and nutritionists, because "anyone" can claim to be a nutritionist or a naturopath. Make sure they are N.M.D., and a Registered Dietician before embarking on your new journey towards better living. Call me when you need me!" I really love that guy.

Tomorrow (tomorrow, there's always tomorrow) I get to lay all this on my oncologist- my decision to not do any more chemotherapy, my desire to detox and purify my body, and my commitment to healthy living and well being. Hopefully, he will give me full support. After all, I do still have cancer, and he is my oncologist. It's not like he's going to drop me as a patient or anything just because I don't want any more chemo. I still need to have labwork done and a scan now and then to see how things look. I will ask him why a biopsy was not offered. Hmm.

So that was my week. How was yours? Love you all!